Programs & Research
For many in the PF community, the pace of change is too slow. Awareness of the disease is almost invisible. Misdiagnosis is common. Access to care and medications are lacking. And the patient experience is frustrating. But together, we can influence change. Today, we are seeking new ways to improve the diagnostic experience, accelerate breakthroughs in medicine, and enhance quality of life.
Improving Time to Diagnosis
Timing is everything. An earlier diagnosis means patients are informed and can take steps to preserve their health and start therapies sooner, potentially slowing disease progression. Thanks to our partners in the PF community, we are closer to understanding the diagnostic journey and knowing one's risk of PF.
Enhancing Quality of Life
Excellence in care and connection to information improves the quality of life for patients and provides comfort for families during difficult times. Together with our partners, we seek out ways to support patients and improve the care they receive so they can focus on their health and well-being.