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Community Resources

Education

Pulmonary fibrosis: 

from the Pulmonary Fibrosis Foundation.

Interstitial Lung Disease and PF: 

from the Pulmonary Fibrosis Foundation.

Downloads

Education

Navigating a diagnosis of pulmonary fibrosis can be challenging, but it's not a journey you have to travel alone. There are many organizations that can help you find the resources and support you need. While we don't create these resources ourselves, we are here to connect you to partners and opportunities that can assist. We will continue to add to these resources as more become available.

Pulmonary fibrosis: 

from the Pulmonary Fibrosis Foundation.

Support Groups + Ways to Get Involved:

Education

Navigating a diagnosis of pulmonary fibrosis can be challenging, but it's not a journey you have to travel alone. There are many organizations that can help you find the resources and support you need. While we don't create these resources ourselves, we are here to connect you to partners and opportunities that can assist. We will continue to add to these resources as more become available.

Pulmonary fibrosis: 

from the Pulmonary Fibrosis Foundation.

Participate in Research and Studies:

Education

Navigating a diagnosis of pulmonary fibrosis can be challenging, but it's not a journey you have to travel alone. There are many organizations that can help you find the resources and support you need. While we don't create these resources ourselves, we are here to connect you to partners and opportunities that can assist. We will continue to add to these resources as more become available.

Pulmonary fibrosis: 

from the Pulmonary Fibrosis Foundation.

Empowering the PF Community 

If you or a family member has been diagnosed with PF, one of the best things you can do is arm yourself with as much knowledge as possible. Here you will find links to educational materials, support groups, and research opportunities. With these and other materials you receive from your healthcare team, you can stay informed and connected to the PF community.

Empowering the

PF Community

with Information

Nov 10, 2022

Early detection with imaging

Sep 19, 2022

Research on diagnosis delays

Aug 22, 2022

Influencing the pace of change

Interstitial lung disease and PF

From the CHEST Foundation

Oxygen therapy resources

From the CHEST Foundation

Pulmonary fibrosis overview

From the Pulmonary Fibrosis Foundation

Selecting your care team

From the CHEST Foundation

Supplemental oxygen therapy and resources

From the Pulmonary Fibrosis Foundation

Support and guidance for caregivers

From the Pulmonary Fibrosis Foundation

Treatment options

From the CHEST Foundation

Education

An interstitial lung disease patient education guide

From the CHEST Foundation

Fact sheets about PF and interstitial lung disease

From the Pulmonary Fibrosis Foundation

Oxygen basics: A step-by-step guide to using supplemental oxygen

From the Pulmonary Fibrosis Foundation

Downloads

Become an advocate

From the Pulmonary Fibrosis Foundation

Contact the Pulmonary Fibrosis Foundation’s Help Center

From the Pulmonary Fibrosis Foundation

Patients and family support

From the PF Warriors

Search for support groups

From the Pulmonary Fibrosis Foundation

Support Groups + Ways to Get Involved:

Join the patient research registry

From the Pulmonary Fibrosis Foundation

Locate a clinical trial

From the Pulmonary Fibrosis Foundation

Participate in Research and Studies:

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